I took the post from my IAM page and I’ve made some changes to it so it would be relevant to post here so that more people could see it. As an update, I’m experiencing fairly heavy side effects from them but I’m hoping that the good outweighs the bad. Most people assume that since we’re heavily modified that it’s easy to give ourselves shots. The other thing that I am interested in finding out is if my injection site reactions will differ in the 6 areas that I have to inject myself that are tattooed. Does anyone else have experience with interferon injections and tattoos? I know that my healing abilities are nonexistant so I have slowed my tattooing down to once every 3-4 months because it usually takes about that long for new tattoo work to properly heal as well as I don’t want trigger my body into having a relapse. Please let me know your experiences with injection therapies (MS related or not). I’d appreciate hearing from you!
“I made this video just few weeks ago to help explain the process of giving myself an interferon injection. I did the prep and injection part in under approximately 3 minutes, while talking through it. This is only the third injection I had taken and the FIRST ONE that I’ve done myself.
I have been diagnosed with MS since the summer of 2007. I first noticed paralysis in my right side during an endurance race when I used to drive race cars pro-am. It spiraled from there into what doctors think was my second major relapse. The first was when I lived in Mexico about 2 years prior and went misdiagnosed as a brain infection.
I have then suffered about 5-6 relapses a year lasting around 3-6 weeks each time. They ranged from partial paralysis to blurry vision to electric shock feelings when I moved my head, as well as a constant pins and needles sensation in my skin. The symptoms in each relapse don’t tend to go away with my type of MS. They just keep hopping on the pile though sometimes they lighten up.
I have been in a state of denial until recently when I lost my vision for 2 months. I had gone from a fully independent woman to needing someone to help me do household chores, drive places, pick my daughter up from the bus stop and all sorts of things one would think a 29 year old should be able to do.
As I say in the video, my doctor said by this time next year I will be severely handicapped at the rate I’m going. After some time waiting I was finally sent my prescriptions and again it sat around in the house for a couple weeks before I mustered up the courage to ask my husband to do the injections. We watched the DVD that came with my kit. We both heckled and mocked the people in the videos because they don’t seem real. They didn’t have a sense of fear or worry or dread, which is why they just didn’t seem real to me. They’re probably very experienced with the treatment, but I’m not.
I decided to make this clip, hoping that maybe someone who was recently diagnosed would see it and it would help them to start their treatment immediately instead of being like me and allowing more and more lesions to form across their brain and spinal cord.
I don’t want to go blind. I don’t want to be in a wheel chair. I don’t want to lose my independence. I don’t want that for you either and I hope that this helps in some way.
If you have any questions, please feel free to contact me.”